The IDF Retreat in Rye Brook New York, held the weekend of June 25, was an extraordinary event! Over 200 attendees from 17 states enjoyed the beautiful Doral Arrowwood Conference Center as they had the opportunity to meet and become acquainted with other patients and family members who live with primary immunodeficiency diseases.
There were opportunities for all ages to learn and have fun. The presenters were amazing- expert immunologists and experienced professionals who volunteered their time and knowledge to provide the most up-to-date and authoritative information on medical and life management issues. Thank you to Shradha Agarwal, MD, Mount Sinai School of Medicine; Francisco Bonilla, MD, PhD, Boston Children’s Hospital; Rebecca Buckley, MD, Duke University Medical Center; Kym Kilbourne, PPTA; David LaRosa, MD, University of Pennsylvania, School of Medicine; Heather Lehman, MD, Women and Children’s Hospital of Buffalo; Debra Sedlak, CP NP, Duke University Medical Center; Becky Wang, MA, LLPC, Private Practice Therapist; and Meredith Zerbe, Baxter Healthcare.
There were youth activities for all ages, both fun and educational. From the youngest learning how to really wash their hands to tweens playing “IDF Jeopardy” and teens being challenged with their “survivor skills”, everyone got involved. All enjoyed the carnival, but probably the best part was the opportunity for everyone to meet and get to know their peers. IDF Teen Council members helped lead youth program sessions-thanks to these remarkable young people, Isaac Antilla, Jordan Kloker, Brittany Matthews, Dustin Palmer and Karissa Ybarra.
Two talented volunteers lead the entertainment Saturday evening. Stephanie Bush performed several of her own songs and joined in with Bill Hindin, our piano man that night. Bill presided over an old-fashioned sing-a-long and guided the group through some old favorites. Who knew the IDF community were such great singers?
Of course, none of this could be possible without our generous sponsors. Much appreciation goes to Baxter Healthcare, CSL Behring, IgG America/ ASD Healthcare, Octapharma, Talecris Biotherapeutics, and Walgreens-Ig Therapy Program for their support. We also want to recognize Bio Rx and Coram for supporting our exhibit hall.
Here are some quotes we received from IDF Retreat participants. Please add your own COMMENTS and share your experience!
“This was a great learning experience for our family. Our daughter got to know other teens with PIDD. Had a great time and enjoyed the retreat.”
“This event was important to learning how to live better, and be more proactive in our own treatment and options.”
“Conference was wonderful and energizing. We’re leaving with new information and new supports/friends! Location and center were perfect. Our kids really had a great time and learned lots!”
“This conference is an unexpected joy and reward! I don’t feel so alone anymore. Thank You!”
“Thank you for the amazing ability to network and interact with those who treat and research in the field. Thank you for all the great food and activities. Always educational!”
“Best One Ever—Thank You!!”
Sounds like it was an amazing time for everyone!! Now who is going to San Francisco in August??
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